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Društvo distrofikov Slovenije
NOVICA: JSS MOL objavil prednostne liste PDF natisni E-pošta
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Ponedeljek, 13 Julij 2009 19:59
Javni stanovanjski sklad Mestne občine Ljubljana je 11.7.2009 objavil Prednostni listi 13. javnega razpisa za dodelitev neprofitnih stanovanj v najem (PDF). Več informacij najdete na njihovi spletni strani.
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Torek, 07 Julij 2009 10:21

Sporočamo vam, da je bila dne 6.7.2009 na Radiu Slovenija – 1.program oddaja Med štirimi stenami posvečena ALS. Vabljeni k poslušanju oddaje preko strežnika RTVSLO na tem linku. 

V naši slikoteki pa najdete slike s srečanja ALS ob svetovnem dnevu ALS.

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NOVICA: Vabimo vas na praznovanje svetovnega dne ALS PDF natisni E-pošta
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Ponedeljek, 15 Junij 2009 07:46
Že od leta 1997 mednarodna zveza ALS društev praznuje 21. junij kot svetovni dan ALS, obolenja, ki prizadene ljudi vsega sveta. V Sloveniji ga praznujemo od leta 2002, ko je bil v okviru Društva distrofikov Slovenije ustanovljen Odobr za ALS.
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V soboto, 13.6.2009 je bil v hali B Gospodarskega rastavišča v Ljubljani uspešno izpeljan X. Občni zbor Društva distrofikov Slovenije. Poleg izredno lepega vremena, nam je delovno predsedstvo predstavilo izjemne dosežke in rezultate na področju delovanja društva, kjer so poleg obsežnega gradiva, ki smo ga člani prejeli domov, še podrobneje predstavili tudi finančne podatke, delovanje obeh društvenih invalidskih podjetij Birografike BORI in Doma dva topola ter obetajoče načrte društva za prihodnost.

V razpravi so se člani pohvalno opredelili do podanih poročil in izrazili zadovoljstvo z doseženem v zadnjih dveh letih ter podprli smernice razvoja in nadaljnega delovanja društva, ki ga je predstavil predsednik Boris Šuštaršič. Vsa poročila in predlagani sklepi so bili nato soglasno potrjeni.

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Lučka upanja v boju proti spinalni mišični atrofiji PDF natisni E-pošta
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Četrtek, 11 Junij 2009 11:44

 

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Moje ime je Mojca Blaško in sem 9. marca 2009 izgubila hčerko Lucio Ano, ki je imela spinalno mišično atrofijo, tip 1. Stara je bila komaj devet mesecev in pol. Prav zaradi te težke življenjske izkušnje sem se odločila, da začnem projek Lučka upanja v očeh s prodajo majčk.

Za več informacij kliknite TUKAJ.

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