{"id":18732,"date":"2020-09-02T15:21:53","date_gmt":"2020-09-02T13:21:53","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=18732"},"modified":"2020-09-02T15:25:06","modified_gmt":"2020-09-02T13:25:06","slug":"sporocilo-za-javnost-po-usklajevalnem-posvetovanju-invalidskih-organizacij-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-2-2-2-2-2-3-3-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-3-2-2-2-2-4","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=18732","title":{"rendered":"(Webinar) Okrogla miza o izku\u0161njah zdravljenja in \u017eivljenju s SMA"},"content":{"rendered":"<p>V pogovoru z zdravniki in bolniki bomo v kontekstu ozave\u0161\u010danja o spinalni mi\u0161i\u010dni atrofiji (SMA) izvedeli, kak\u0161ne so izku\u0161nje pri zdravljenju te redke bolezni, za katero \u0161e pred nedavnim sploh ni bilo zdravila, zdaj pa se polica z novimi zdravili zanjo hitro polni. Odpirajo se mo\u017enosti skoraj normalnega razvoja otrok, ki so \u0161e prek kratkim v ve\u010dini primerov \u017eiveli le dve leti. Kak\u0161ne so izku\u0161nje z zdravljenjem v Sloveniji, kak\u0161no oskrbo potrebujejo in kako \u017eivijo, nam bosta povedala vodilna nevrologa, ki skrbita za otroke in odrasle s SMA, ter bolniki sami. Pridru\u017eite se nam na spletnem dogodku, okrogli mizi, ki bo 3. septembra ob 16. uri. Za ogled videokonference je potrebna predhodna prijava <a href=\"https:\/\/medicina.finance.si\/webinar_sma\" target=\"_blank\" rel=\"noopener noreferrer\">TUKAJ<\/a>.<\/p>\n<p>Ve\u010d info si lahko preberete <a href=\"https:\/\/medicina.finance.si\/8964777\/%28Webinar%29-Okrogla-miza-o-izkusnjah-zdravljenja-in-zivljenju-s-SMA\" target=\"_blank\" rel=\"noopener noreferrer\">v tem \u010dlanku<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>V pogovoru z zdravniki in bolniki bomo v kontekstu ozave\u0161\u010danja o spinalni mi\u0161i\u010dni atrofiji (SMA) izvedeli, kak\u0161ne so izku\u0161nje pri zdravljenju te redke bolezni, za katero \u0161e pred nedavnim sploh ni bilo zdravila, zdaj pa se polica z novimi zdravili zanjo hitro polni. Odpirajo se&#8230;<\/p>\n","protected":false},"author":1,"featured_media":18472,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-18732","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-07-02 16:02:18","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/18732","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=18732"}],"version-history":[{"count":2,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/18732\/revisions"}],"predecessor-version":[{"id":18735,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/18732\/revisions\/18735"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/18472"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=18732"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=18732"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=18732"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}