{"id":19363,"date":"2021-12-15T12:09:56","date_gmt":"2021-12-15T11:09:56","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=19363"},"modified":"2021-12-15T12:26:06","modified_gmt":"2021-12-15T11:26:06","slug":"sah-in-teden-sporta-distrofikov-2-2-2-2-2-3-3-2-2-3-2-2-2-2-2-2-2","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=19363","title":{"rendered":"Spletni dogodek o spinalni mi\u0161i\u010dni atrofiji"},"content":{"rendered":"

Revija Medicina danes je pripravila izobra\u017eevalni spletni dogodek, na katerem se je voditeljica Vesna Toma\u017eevi\u010d pogovarjala s strokovnjaki \u00a0o \u017eivljenju s spinalno mi\u0161i\u010dno atrofijo (SMA). Zdravljenje tega obolenja je zelo spremenilo prognozo in \u017eivljenje s SMA. Nevrologa izr. prof. dr. Damjan Osredkar in \u00a0doc. dr. Bla\u017e Koritnik, prehranski strokovnjak dr. Evgen Benedik in fiziatrinja dr. Metka Mohari\u0107 so spregovorili, kako zelo se je spremenila obravnava obolelih s SMA in kateri so, poleg zdravljenja osnovne bolezni z zdravili, glavni izzivi njihove zdravstvene oskrbe. Skozi zgodbe obolelih, tako odraslih kot tudi otrok, pa je bilo predstavljeno, kako se vsa ta nova dognanja preslikavajo v realno \u017eivljenje.<\/p>\n

Vabljeni k ogledu posnetka<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Revija Medicina danes je pripravila izobra\u017eevalni spletni dogodek, na katerem se je voditeljica Vesna Toma\u017eevi\u010d pogovarjala s strokovnjaki \u00a0o \u017eivljenju s spinalno mi\u0161i\u010dno atrofijo (SMA). Zdravljenje tega obolenja je zelo spremenilo prognozo in \u017eivljenje s SMA. Nevrologa izr. prof. dr. Damjan Osredkar in \u00a0doc. dr….<\/p>\n","protected":false},"author":3,"featured_media":19368,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-19363","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-05-26 01:23:00","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/19363","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19363"}],"version-history":[{"count":2,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/19363\/revisions"}],"predecessor-version":[{"id":19367,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/19363\/revisions\/19367"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/19368"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19363"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=19363"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=19363"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}