{"id":20402,"date":"2023-08-21T07:00:06","date_gmt":"2023-08-21T05:00:06","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=20402"},"modified":"2023-08-20T22:05:58","modified_gmt":"2023-08-20T20:05:58","slug":"sporocilo-za-javnost-po-usklajevalnem-posvetovanju-invalidskih-organizacij-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-2-2-2-2-2-3-3-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-3-2-2-2-72","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=20402","title":{"rendered":"Nove mo\u017enosti zdravljenja obolelih z DMD"},"content":{"rendered":"

Ob svetovnem dnevu Duchennove in Beckerjeve mi\u0161i\u010dne distrofije<\/p>\n

vas vabimo na zoom predavanje<\/p>\n

Nove mo\u017enosti zdravljenja obolelih z Duchennovo mi\u0161i\u010dno distrofijo<\/strong><\/p>\n

prof. dr. Damjana Osredkarja, dr. med., predstojnika KO za otro\u0161ko, mladostni\u0161ko in razvojno nevrologijo iz Pediatri\u010dne klinike UKC Ljubljana,<\/em><\/p>\n

\u00a0<\/strong>v ponedeljek, 4. septembra 2023, ob 16. uri,<\/strong><\/p>\n

preko Zoom aplikacije.<\/em><\/p>\n

 <\/p>\n

Poznavanje svojega redkega obolenja je za obolelega in njegovo dru\u017eino zelo pomembno, zato smo pripravili zdravstveno predavanje, na katerem bo prof. dr. Osredkar spregovoril o obetih zdravljenja. V drugem delu sre\u010danja bo odgovarjala na va\u0161a vpra\u0161anja, ki jih lahko posredujete tudi v naprej na naslov andreja.sustar@drustvo-distrofikov.si<\/a> .<\/p>\n

*\u00a0\u00a0\u00a0\u00a0 *\u00a0\u00a0\u00a0\u00a0 *\u00a0\u00a0\u00a0\u00a0 *\u00a0\u00a0\u00a0\u00a0 *<\/strong><\/p>\n

Prosimo vas, da svojo udele\u017ebo sporo\u010dite na e-naslov andreja.sustar@drustvo-distrofikov.si<\/a> . Po prijavi vam bomo na va\u0161 e-naslov poslali povezavo do predavanja in navodila za sodelovanje. Za dodatne informacije smo vam na razpolago vsak delovni dan med 9. in 12. uro na telefonski \u0161tevilki 01\/47 20 513 ali po e-po\u0161ti.<\/p>\n

Veselimo se sre\u010danja in vas lepo pozdravljamo.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Ob svetovnem dnevu Duchennove in Beckerjeve mi\u0161i\u010dne distrofije vas vabimo na zoom predavanje Nove mo\u017enosti zdravljenja obolelih z Duchennovo mi\u0161i\u010dno distrofijo prof. dr. Damjana Osredkarja, dr. med., predstojnika KO za otro\u0161ko, mladostni\u0161ko in razvojno nevrologijo iz Pediatri\u010dne klinike UKC Ljubljana, \u00a0v ponedeljek, 4. septembra 2023,…<\/p>\n","protected":false},"author":3,"featured_media":20406,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-20402","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-05-09 21:48:36","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20402","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20402"}],"version-history":[{"count":5,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20402\/revisions"}],"predecessor-version":[{"id":20409,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20402\/revisions\/20409"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/20406"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20402"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20402"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20402"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}