{"id":20414,"date":"2023-09-06T14:21:30","date_gmt":"2023-09-06T12:21:30","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=20414"},"modified":"2023-09-06T14:21:30","modified_gmt":"2023-09-06T12:21:30","slug":"sporocilo-za-javnost-po-usklajevalnem-posvetovanju-invalidskih-organizacij-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-2-2-2-2-2-3-3-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-3-2-2-2-73","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=20414","title":{"rendered":"\u017diveti z DMD"},"content":{"rendered":"

\u017diveti z DMD<\/p>\n

Svetovna organizacija za obolele z Duchennovo mi\u0161i\u010dno distrofijo (v nadaljevanju DMD) je leta 2021 ob svetovnem dnevu ozave\u0161\u010danja o
\nDuchennovi in Beckerjevi mi\u0161i\u010dni distrofiji v ospredje postavila mlade odrasle ter jih nagovorila, da naj \u017eivijo svoje \u017eivljenje v najve\u010dji mo\u017eni meri. V zadnjih desetletjih se je namre\u010d pri\u010dakovana \u017eivljenjska doba obolelih z DMD znatno podalj\u0161ala in odrasli z DMD niso ve\u010d izjema. Odraslo \u017eivljenje z DMD tako prina\u0161a nove izzive in prilo\u017enosti ter nove zdravstvene te\u017eave.<\/p>\n

Pobudi svetovne organizacije smo se pridru\u017eili tudi pri Dru\u0161tvu distrofikov Slovenije in k sodelovanju povabili mlade z DMD. Nastal je film, v katerem Jure, Klemen, Nejc in Oliver delijo svojo zgodbo in izku\u0161nje.<\/p>\n

Film si lahko ogledate na\u00a0https:\/\/www.youtube.com\/watch?v=xjCu9dGWRj4<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

\u017diveti z DMD Svetovna organizacija za obolele z Duchennovo mi\u0161i\u010dno distrofijo (v nadaljevanju DMD) je leta 2021 ob svetovnem dnevu ozave\u0161\u010danja o Duchennovi in Beckerjevi mi\u0161i\u010dni distrofiji v ospredje postavila mlade odrasle ter jih nagovorila, da naj \u017eivijo svoje \u017eivljenje v najve\u010dji mo\u017eni meri. V…<\/p>\n","protected":false},"author":3,"featured_media":20406,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-20414","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-05-08 09:27:42","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20414","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20414"}],"version-history":[{"count":2,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20414\/revisions"}],"predecessor-version":[{"id":20416,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20414\/revisions\/20416"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/20406"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20414"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20414"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20414"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}