{"id":20785,"date":"2024-06-14T08:14:49","date_gmt":"2024-06-14T06:14:49","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=20785"},"modified":"2024-06-14T08:14:49","modified_gmt":"2024-06-14T06:14:49","slug":"sporocilo-za-javnost-po-usklajevalnem-posvetovanju-invalidskih-organizacij-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-2-2-2-2-2-3-3-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-3-2-2-2-9-8","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=20785","title":{"rendered":"Svetovni dan ALS obolenja"},"content":{"rendered":"

Dru\u0161tvo distrofikov Slovenije (Odbor za ALS) in Tim za ALS Klini\u010dnega in\u0161tituta za klini\u010dno nevrofiziologijo Nevrolo\u0161ke klinike, UKC Ljubljana, vas<\/p>\n

OB SVETOVNEM DNEVU AMIOTROFI\u010cNE LATERALNE SKLEROZE,<\/strong><\/p>\n

vabimo na zoom predavanje<\/p>\n

v sredo, 26. junija 2024, ob 17.00 uri.<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

P R O G R A M<\/strong><\/p>\n

Uvodni pozdrav<\/strong><\/p>\n

Prof. dr. Janez Zidar, dr. med., vodja Tima za ALS, Klini\u010dni in\u0161titut za klini\u010dno nevrofiziologijo, UKC Ljubljana<\/em><\/p>\n

mag. Mateja Toman, predsednica Dru\u0161tva distrofikov Slovenije<\/em><\/p>\n

\u00a0<\/em><\/p>\n

Kaj si lahko obetamo od dolgotrajne oskrbe?<\/strong><\/p>\n

Katja Mrzli\u0107, dipl. soc. delavka, koordinatorka invalidskega varstva na CSD Ju\u017ena Primorska, med 2020 in 2022 strokovna delavka v pilotnem projektu Skupaj za starej\u0161e v MO Koper <\/em><\/p>\n

\u00a0<\/em><\/p>\n

Projekt E-oskrba na daljavo<\/strong><\/p>\n

Mag. Peter Pustati\u010dnik,\u00a0 univ. dipl. in\u017e. el., vodja podro\u010dja za eZdravje in eOskrbo, Telekom Slovenije, d.d.<\/em><\/p>\n

 <\/p>\n

Vpra\u0161anja in odgovori<\/strong><\/p>\n

 <\/p>\n

Prosimo vas, da svojo udele\u017ebo sporo\u010dite na e-naslov andreja.sustar@drustvo-distrofikov.si<\/a>. Po prijavi vam bomo na va\u0161 e-naslov poslali povezavo do sre\u010danja in navodila za sodelovanje.<\/p>\n

Veselimo se sre\u010danja in vas lepo pozdravljamo.<\/p>\n

Strokovna sodelavka<\/p>\n

Andreja \u0160u\u0161tar<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Dru\u0161tvo distrofikov Slovenije (Odbor za ALS) in Tim za ALS Klini\u010dnega in\u0161tituta za klini\u010dno nevrofiziologijo Nevrolo\u0161ke klinike, UKC Ljubljana, vas OB SVETOVNEM DNEVU AMIOTROFI\u010cNE LATERALNE SKLEROZE, vabimo na zoom predavanje v sredo, 26. junija 2024, ob 17.00 uri. \u00a0 P R O G R A…<\/p>\n","protected":false},"author":3,"featured_media":20786,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-20785","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-04-16 00:05:21","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20785","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20785"}],"version-history":[{"count":1,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20785\/revisions"}],"predecessor-version":[{"id":20787,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/20785\/revisions\/20787"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/20786"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20785"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20785"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20785"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}