{"id":21176,"date":"2025-09-01T11:41:47","date_gmt":"2025-09-01T09:41:47","guid":{"rendered":"http:\/\/www.drustvo-distrofikov.si\/?p=21176"},"modified":"2025-09-24T16:05:35","modified_gmt":"2025-09-24T14:05:35","slug":"sporocilo-za-javnost-po-usklajevalnem-posvetovanju-invalidskih-organizacij-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-2-2-2-2-2-3-3-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-2-3-3-2-2-2-129","status":"publish","type":"post","link":"http:\/\/www.drustvo-distrofikov.si\/?p=21176","title":{"rendered":"Konferenco o Duchennovi mi\u0161i\u010dni distrofiji"},"content":{"rendered":"

V a b i l o<\/strong><\/p>\n

na Konferenco o Duchennovi mi\u0161i\u010dni distrofiji (DMD)<\/strong><\/p>\n

\u00bbDru\u017eina- srce oskrbe\u00ab<\/strong><\/p>\n

v soboto, 27. septembra 2025, ob 9.00 uri,<\/strong><\/p>\n

M hotel, Ljubljana, Der\u010deva ulica 4.<\/strong><\/p>\n

 <\/p>\n

Konferenca je osrednji dogodek ob Svetovnem dnevu ozave\u0161\u010danja o Duchennovi in Beckerjevi mi\u0161i\u010dni distrofiji, ki ga vsako leto obele\u017eujemo 7. septembra. Leto\u0161nja tema \u00bbDru\u017eina \u2013 srce oskrbe\u00ab poudarja pomen dru\u017einskih \u010dlanov pri skrbi za obolele z Duchennovo in Beckerjevo mi\u0161i\u010dno distrofijo.<\/p>\n

Na konferenci bomo povezali izku\u0161nje in nova spoznanja s podro\u010dja obravnave oseb z DMD. Vabljeni strokovnjaki bodo z nami delili znanje in izku\u0161nje, ki bodo prispevala k bolj\u0161emu razumevanju bolezni, soo\u010danju z njo ter krepitvi zdravja in po\u010dutja obolelih. Konferenca bo tudi prilo\u017enost za dru\u017eenje, povezovanje ter izmenjavo izku\u0161enj in dobrih praks.<\/p>\n

PROGRAM<\/a><\/p>\n

Udele\u017eba na konferenci je brezpla\u010dna, za udele\u017eence (najve\u010d 2 odrasla in 2 otroka) je zagotovljeno tudi brezpla\u010dno kosilo.<\/p>\n

Potrebna je prijava na<\/strong> https:\/\/forms.gle\/DKG1XLEBTwQe9dCG6<\/a><\/p>\n

Prosimo, da udele\u017ebo sporo\u010dite najkasneje do 22. septembra 2025. <\/strong><\/p>\n

Parkiranje:<\/p>\n

Parkiri\u0161\u010de Trg prekomorskih brigad je na voljo za hotelom, stro\u0161ek parkiranja za prvi dve uri (in vsako naslednjo uro) je 0,70 EUR, pla\u010dilo je na parkirnem avtomatu: https:\/\/www.lpt.si\/parkirisca\/lokacije-in-opis-parkirisc\/parkirisca-za-osebna-vozila\/trg-prekomorskih-brigad<\/a><\/p>\n

Parkiri\u0161\u010de \u0160i\u0161ka se nahaja le 200 m od hotela, poleg KGZS na Celov\u0161ki cesti 135, stro\u0161ki parkiranja so 0,80 EUR na uro, pla\u010dilo je na parkirnem avtomatu:. http:\/\/www.janez.si\/185\/parking-lots<\/a><\/p>\n

Organizator konference je Dru\u0161tvo Du\u0161enova mi\u0161i\u010dna distrofija Slovenija<\/a>, soorganizator je Dru\u0161tvo distrofikov Slovenije. Za izvedbo konference je organizator pridobil donatorska sredstva. Za dodatne informacije je na voljo ga. Sanja Kogelnik na sanjakogelnik@gmail.com<\/a><\/p>\n

Vljudno vabljeni<\/p>\n

Dru\u0161tvo du\u0161enova mi\u0161i\u010dna distrofija Slovenija
\nP r e d s e d n i c a
\nSanja Kogelnik<\/p>\n

Dru\u0161tvo distrofikov Slovenije
\nP r e d s e d n i c a
\nMateja Toman<\/p>\n

 <\/p>\n

VABILO<\/a><\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

V a b i l o na Konferenco o Duchennovi mi\u0161i\u010dni distrofiji (DMD) \u00bbDru\u017eina- srce oskrbe\u00ab v soboto, 27. septembra 2025, ob 9.00 uri, M hotel, Ljubljana, Der\u010deva ulica 4.   Konferenca je osrednji dogodek ob Svetovnem dnevu ozave\u0161\u010danja o Duchennovi in Beckerjevi mi\u0161i\u010dni distrofiji,…<\/p>\n","protected":false},"author":3,"featured_media":21175,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[187],"tags":[],"class_list":["post-21176","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novice"],"publishpress_future_action":{"enabled":false,"date":"2026-04-22 14:25:54","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/21176","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=21176"}],"version-history":[{"count":6,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/21176\/revisions"}],"predecessor-version":[{"id":21204,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/posts\/21176\/revisions\/21204"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=\/wp\/v2\/media\/21175"}],"wp:attachment":[{"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=21176"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=21176"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.drustvo-distrofikov.si\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=21176"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}